Tuesday, July 29, 2008
Well, we didn't get the news we had hoped for. Though the doctor couldn't visually see any changes from 3 years ago, the biopsies showed change. As I stated before, Sean's stomach was growing into his esophagus. Now, there is a stomach and intestine mixture in the esophagus. The doctor said this is a progressive change. He now has what is called Barrett's Esophagus which means there are pre-cancerous cells present. The condition only develops into cancer in 5% of cases but usually this is an elderly condition. Because Sean is only 20 who knows what will happen. Our GI doc is a pediatric specialist and because of that hasn't really dealt with this condition. He is going to talk to some of his colleagues and see what they have to say. We may have to go see an adult GI doc. Right now he has said that he will need to be monitored yearly instead of every 3 years. I'm trying not to freak out about this but that's hard right now. I am going to research this and see what else I can find.